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Volunteer Data Policy

Who We Are 

BDD is the data controller of the personal information you provide when you express interest in participating in a clinical trial. You can contact us at: 

  • Address: BDD Pharma, Basement Floor, Medical Block, Glasgow Royal Infirmary, 84 Castle Street, Glasgow G4 0SF â€‹

 

What Data We Collect 

When you complete our online form, we collect: 

  • Standard personal data (e.g., name, phone number, email) 

  • Sensitive personal data (e.g., age, health diagnoses) 

 

This information may include special category data (health information), which is protected under data protection law. 

 

How We Use Your Data 

We use your information only to: 

  • Assess your suitability for ongoing or upcoming clinical trials 

  • Contact you about participation opportunities 

  • Maintain records of enquiries and consents 

 

We will not use your data for marketing purposes. 

 

Our Legal Basis 

We process your information based on your explicit consent (Article 6(1)(a) and Article 9(2)(a) GDPR). You may withdraw your consent at any time by contacting us (see above). 

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How We Collect and Store Your Data 

The online form you complete is hosted on Wix.com, which provides our website services. 

  • Wix stores form submissions on its secure servers and also forwards them to us by email. 

  • We download your information to our secure systems and delete it from Wix within 14 days. 

  • Wix may process data outside the EU/EEA (including Israel and the United States). In such cases, Wix relies on adequacy decisions or standard contractual clauses approved under GDPR to safeguard your information. 

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Who Has Access to Your Data 

  • Our research team, for the purpose of trial recruitment. 

  • Wix.com, acting as our data processor, to provide website hosting and form submission services. 

 

We do not share your data with any other third parties without your consent unless required by law. 

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How Long We Keep Your Data 

We will securely delete your data from Wix within 14 days. BDD (or approved partners) will retain your personal information only as long as necessary for the recruitment process or as required by clinical trial regulations. We will confirm your continued consent for us to retain your data on our volunteer database every 3 years. We will make 2 attempts to contact you and if we receive no response your data will be deleted from our database.

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Your Rights 

You have the right to: 

  • Access the data we hold about you 

  • Correct any inaccurate information 

  • Withdraw your consent and request deletion of your data 

  • Restrict or object to our processing 

  • Lodge a complaint with your local Data Protection Authority 

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To exercise your rights, please contact us at enquiries@bddpharma.com 

 

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